Dr. David Lippicott
Some say the disease is the worst pain known to man. It has been dubbed "the suicide disease" because so many sufferers take their own lives.
"One of the most recent patients I've had that did well with surgical treatment mentioned suicide as how painful it was," said Dr. David Lippicott.
Dr. Lippincott says the disease is triggered when a nerve at the base of the skull becomes compressed by an artery. Imagine having spasms of pain up to 20 times a day, never knowing when the next one will occur or being worried your daily routine will cause an episode.
Jessica Porter from KVAL News talked to Jenny LeCompte about her condition for a report set to air on KVAL-TV News and KVAL.com at 6 p.m. on Monday, February 4, 2013.