Javon

HELP 6 YEAR OLD JAVON SIMMONS

What can you do to help?
Javon is a sweet 6-year old little boy who loves to play sports. On October 2nd, his mom Fawn Dussault, noticed some irregularities with his leg movement. Two days later he was rushed to Dornbecker Children’s Hospital in Portland. On October 5th, Javon was diagnosed with a rare childhood brain stem cancer, Diffuse Intrinsic Pontine Glioma (DIPG).
One week after his diagnosis, Javon was accepted into a clinical trail at St. Jude Children’s Research Hospital in Memphis, TN. He is currently having trouble with his eyesight and is also having a difficult time walking since the part of the brain that controls all bodily movement is being affected by the tumor.

He began radiation and chemo treatment last week to reduce the size of the tumor, which will help reduce the symptoms he is experiencing.

We need to raise money for medical expenses and so that Javon can also have on fun experiences during the treatment and immediately following (football games, Disneyland) as well as funding the travel arrangements needed to return from home and from Memphis and spend time in California. We desperately need your help!!

This situation is unimaginable and we are doing our best to stay strong for Javon. We appreciate anyone who can help us in this difficult time.

Currently there is a fundraiser at Papa's pizza on the 22nd of November at the West 11th location.

We also have a non-profit bank account set up for direct donations at Key Bank under the Javon Simmons and Fawn Dussault.

Facts about DIPG
Diffuse Intrinsic Pontine Glioma (DIPG)
A Diffuse Intrinsic Pontine Glioma (DIPG) is a tumor located in the pons (middle) of the brain stem. The brain stem is the bottom most portion of the brain, connecting the cerebrum with the spinal cord. The majority of brain stem tumors occur in the pons (middle brain stem) and are diffusely infiltrating, (they grow amidst the nerves), and therefore cannot be surgically removed. Glioma is a general name for any tumor that arises from the supportive tissue called glia, which help keep the neurons, ("thinking cells") in place and functioning well. The brain stem contains all of the "wires" converging from the brain to the spinal cord as well as important structures involved in eye movements, face and throat muscle control and sensation.
Source: The American Brain Tumor Association
The median overall survival of children diagnosed with DIPG is approximately 9 months. The 1 and 2 year survival rates are approximately 30% and less than 10%, respectively. These statistics make it one of the most devastating pediatric malignancies.
Source: Treatment of newly diagnosed diffuse brain stem gliomas in children - David N. Korones.
The standard treatment for DIPG is 6 weeks of radiation, which often dramatically improves symptoms. Unfortunately, problems usually recur after 6 to 9 months, and progress rapidly.
Source: St Jude Childrens Research Hospital
In their quest for a cure, DIPG children must move from one experimental protocol to another enduring treatments with many side effects which would be unacceptable with any other diagnosis. The cruelty of this disease cannot be denied. Sparing their cognitive abilities, DIPG slowly robs children of their motor functions resulting in partial paralysis, loss of voice and sight and finally ending with an inability to eat and breathe. It is both heart wrenching and painful as they are fully aware of their decline often until their last day. The cure starts now...
Source: The Cure Starts Now
We currently DO NOT know what causes brain tumors. The major causes seem to be chromosomal and genetic abnormalities. Research so far has statistically proved very few instances of possible environmental causes for childhood cancer. The Children's Oncology Group (COG) continues to conduct epidemiology, cytogenetic, and microbiology studies in their quest for answers.
Funding for pediatric brain tumor research is critical since treatments discovered for adult brain tumors may not be appropriate for children. Pediatric cancer research has been important in understanding the basic biology of cancer, treating adults with cancer and providing principles of therapy and advances for other diseases of children and adults. For example, chemotherapy was first shown to be effective in curing children with cancer.
In recent years, the amount of funding for childhood cancer clinical research from the federal government has been declining.
Source: CureSearch

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Costello says ... on Monday, Feb 25 at 6:52 PM

Cancer can be fix easy. Costello

CHRISTINE BALL says ... on Friday, Aug 24 at 12:36 PM

MY GREAT NEPHEW,HUNTER PEREZ 5 YEARS OLD HAS BEEN RECENTLY BEEN DIAGNOSED WITH PONTINE GLIOMA,HAS FINISHED RADIATION NOW DOING CHEMO,WE ARE DESPERATELY SERCHING FOR A SOLUTION WHICH IS SLIM TO NONE,SUGGESTIONS,midgeball@gmail.com,ty

Erin obrien says ... on Thursday, Jun 7 at 10:52 AM

my prayers and thoughts are with you. I heard your story on the radio and was so touched and moved. I made a donation and it didn't seem like a lot but I did it anyways cause if god can make 300 people feel the way I feel you would have the funds.

satori says ... on Friday, Dec 16 at 9:28 PM

Every one needs to help my brothers best friend and i just whant to let javon that he is the most specialist boy on earth and i love this boy with all my heart and i hope he stays alive and he gets rid of his brain tumor and i just whant to help him

brendahall6@yahoo.com says ... on Thursday, Dec 1 at 6:53 AM

Please share his fb page or website.He will need our support and love during this battle.The dipg community will be here for the family as they try to make decisions for their little man.Please find us on fb, dipg awareness group.Prayers to the famil

brendahall6@yahoo.com says ... on Thursday, Dec 1 at 6:49 AM

Garett was just four years old when one evening he suddenly couldn't walk.He was diagnosed with dipg.This is truly the most devastating brain tumor you can get.Garett lived for 13 months.Prayers to you sweet Javon.Please help this family!

Tommy says ... on Friday, Nov 11 at 2:33 AM

Javon is my best friend. Tommy My six year old son knows his best friend is fighting for his life. Please contribute. Thank you! Mr and Mrs. Olson

Michele says ... on Friday, Nov 4 at 12:52 PM

My heart goes out to the family. I will keep you in my prayers!

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